thebluefolder

May 3, 2012

Ten golden toes

You know that song when I’m 64 by the Beatles, well they were off by 40 years because I feel like I’m 104.  Cancer therapy is a bitch!  As Armando would say in his broken english “I cry, I cry”.  Just typing this after my third hot bath soak, today hurts. Whine whine whine…Oh poor pitiful me!  I wish it was wine wine wine, give me Rombauer, Frank family, anything from Italy…Instead it’s meds meds meds.  Where is my sense of humor? Not much seems funny, I feel like a wounded animal that wants to crawl under the deck and lick my wounds. I have my brief moments where I put on a hat and a pretty dress, I try to enjoy this life of farawayness.  That is me far away from you. (Tears down cheeks)

As strange as it seems or as much as I whine considering what I am going through physically I am doing great! LOL, no really I am!  I think. What else are you going to do but get up each day and do as much as you can under the circumstances.  Most of the time I don’t know what the circumstances are untill they hit me in the gut or the feet which ever comes first, but I know there is always tomorrow and when this is all over.  Brings to mind that stupid saying “This too shall pass”, must say I’m tired of hearing that.  Yes it is passing… right out my a–!  ( Sorry couldn’t help myself )

Not nearly as many bald women as I has thought there would be…other than the women at the chemo center the only one I have seen was in the dog park and she informed me it was not due to chemo but that she was “Butch” (Lesbian for those of you who don’t know the term.) Someone told me Washington D.C. is filled with bald women.  Strangers like to comment “You look beautiful” “How are you doing” “My daughter (wife Etc.) is going through the same thing” Etc.  Not fun to be bald, not a badge of honour as some women have said they feel.  Wig is hot, wig makes a rash, wig feels like I am a different person. Hat on, hat off, hat on, hat off, hat on, hat off.  Hat off feels better but then I feel like I look like a sick person.  Which I am, LOL.

Can’t wait for the other side…the other side of cancer that is.  I feel much like a monk  in my own little world trying to live amongst the rest of the world marching to a different beat. I long to be like I was yet I must do my time.  I feel bad for Miranda (My daughter) having to bare the brunt of the change in Mom.  It’s she and I, day in and day out.  I try hard to fake it, to shine despite my waning self but I know she (Tears down cheeks) has to suffer the most along with me.  Hopefully we can see Paris together when this is over.

“How are you” “What is it like” “Is it like you imagined it would be”  Question questions questions, how to answer the questions. Each day would have a different answer and when this is all over I will have a different answer I’m sure.  For me the most surprising part is the “farawayness”. Partly because some physical items have me distracted, partly because of  worry due to financial issues or worry that something pressing has not been tended to.  This too shall pass, LOL.

I have ten golden toes and I am thankful. Got a pedicure with Miranda and painted them bright shiny gold,  was told not to by the doctors due to infections etc., but I did it any way and am so glad I did.  I soaked the extremely painful little buggers for the third time today in the tub and they looked so pretty.  Apparently this type od chemo therapy (Taxol) can make you finger and toe nails fall off, so I am grateful to have ten to polish thus far.

Feeling feeling feeling grateful for so many blessings from my peeps, where would I be without all of them to send good juju my way, I can’t imagine.

Well Chemo #11 tomorrow

And now for you listening pleasure a link to one of my all time favorite pieces of music.  http://www.youtube.com/watch?v=B-mLkzFUzTA

XO S

(Fingers hurt too much to edit/spellcheck, sorry)

Advertisements

April 14, 2012

Serious undocumented cancer side effect occuring

Everything today has been

heavy and brown.

Bring me a Unicorn

to ride about the town.

                                                                      Anne Morrow Lindberg

Been a rough few days…didn’t even cry this much when I found out I had cancer.  I’ll be fine, I’ll get over it, I’ll persevere, but today…

Cancer is embarrassing.

Embarrassed…

To be poor

To be bald

To be bald with a red bumpy rash

To be divorced

To need help

To have bloody snot rags in the bathroom toilet

To have side effects

To have my main topic of conversation to be cancer/me

To be judged

To wear a wig

To lie when I really do need help

To wish I had a Mom that was closer

To want lie down

To make poor choices

To not be able to pay my share

To not be able to commit

To have my children see me looking cancery

To make payments on or have overdue bills

To have cancer

To be alone

To have to cancel

To have wet farts

To forget things

To not be strong

To ask for help

To have splurged

To not be sharp

To have a dirty car

To be whining now

To have a drunk ex

To not have a cash safety net

To have thinning pubic hairs

To need to walk slower

To want

To have forgotten/overlooked/missed something important to someone

To have pride

To not be able to help others more

To cry

Embarrassed to be embarrassed.

March 17, 2012

Not a good time to commit a crime

Boy what a week, three trips to UCSF for progress tests and Chemo in addition to Sherman being  home on spring break.  He is doing great and it’s nice to have  home. This was our first visit since all the cancer stuff went down. He sure wanted to be here for me , kept assuring him I am good hands is so many unbelievable ways and to get on with his new life. He went to two of the appointments with me. Twas very nice.

Feeling a mix of assorted symptoms , some constant, some come and go but nothing more than slowing me down and causing me to put much more thought into everything I do, if I can remember to do it.  Chemo brain is quite present and I am finding my way as to how not to be so affected by it. I keep a note pad close by and hope I remember what to write down.  It’s actually quite disturbing. A few examples of fuzzy brain:

I was dishing up dinner plates and put the salad dressing on the plates before the salad

I get a thought I rush to grab the note pad and before I can get out the note pad the thought is gone

I was putting away dishes and had my frying pan in hand and I just stood there stareing at it for the longest time  trying so hard to remember where it goes in my kitchen

Sent Miranda to a doctors appointment which I logged into my calender on the wrong day

Went to Safeway to pick up a prescription, got home and thought “Shoot I forgot to pick up my prescription” but then remembered I did. The next day waiting in the doctors office ‘Shoot I forgot to pick up my prescription”  but then remembered I did.

My typing skills are severely diminished

There are many more but I can’t remember what they are.

Shaved my head, couldn’t take shedding more than my dogs that I have to vacuum up after daily. It was so yucky having hair everywhere and I mean everywhere. Not a good time to commit a crime as your hair samples would surely be left behind. I went to a salon owned by a dear sweet lady, filled with such caring and loving women who took extra good care of me.  When I checked in at the front desk there were three ladies behind the counter, I told them my name and they gave the “You’ve got cancer look on their faces” but quickly swaddled me in love and laughter. They shaved, washed conditioned and massaged my head. Sent me off with promises to pray for me.

I have one friend who volunteered to shave her head is solidarity and one who volunteered to shave hers legs, such good friends. Just too much to ask though.

Today I planned an impromptu “check out my bald head” get together at a friends, made an awesome baked goat cheese appetizer, we sipped wine and tried on my wig, hats and scarves and had fun, so nice to have sisters and girlfriends. Two hours of  fun was more than enough fun for me, came home took a hot bath and went to bed.Think I’m getting a virus.

Eeeeee gads, I’m bald! Not nearly as bad as I thought. I bought a very cute wig, I have hats, I have scarves, but for now bald feels best.

So many loving hearts with me and for this I am sooo grateful.  What would I do without all of you. See that smile on my face in that bald photo, It’s because I am loved and cared for by you.   XO S

Create a free website or blog at WordPress.com.

Everyone's a Guru

Do you want to think for yourself or play follow the leader?

Sunny Sleevez

Sun Protection & Green Info

Pedestrian Art, Sacramento

A tour of public art in the downtown Sacramento area.

Stage 1 Breast Cancer

My life with the triple negative type - A Winning Battle (and Search for Ways to Cope With Darn Chemo Brain)

Mission Accomplished

Now in Georgia, Deb hopes to write more books.